Wow! It has been a LONG time since I last posted. I am sorry to any one who looked for updates and they haven't been there. I might miss some things since I am trying to cover so much in this blog.
1. Dillon's hearing aids are doing well. He seems to be able to hear with them. I have seen him turn to my voice a few times but mostly we have seen reactions in his hands and face to know that he hears. He seems to like music - especially kid songs like I was playing for him this morning.
2. My parents came for a visit. It was so nice having them here. My mom helped with cleaning and keeping me company and my dad made meals, washed dishes, ran errands, etc. They were a big help.
3. Thanksgiving was nice. We went to Boston to see Dillon's Great Great Grandparents (that is not a typo they are his great-great grandparents.) It was a lot of fun. Dillon liked sitting on Grandpa's lap for hours while he talked to him - Dillon even started talking back a lot. I think he enjoyed all the attention.
4. We have new hearing aid molds for Dillon and he gets a new pair on Dec 20 when he goes for another hearing test. It is amazing how much difference there is in the size of his ear!
5. The eye doctor in Philly (at a special eye center) said that Dillon IS responding to light. At first he didn't even do this. However, most blind people do have some degree of light perception so this does not mean he is seeing. It does mean, however, that he is making some progress.
6. Since Wed. Dec 6 Dillon has been having seizures. They think they let him out grow the medicine. He was only 7-8 pounds when they put him on Keppra and as of Thursday he is 11 lbs 6 oz. We took him to the ER on Friday, they gave him an IV with Dilantin (sp?) and increased the keppra even more. He has still been having them but they don't last as long and don't seem to be as strong. (We know he is having one because he pulls his arms into his chest very tight then relaxes and does this for 4-8 minutes and then stops. He also turns his head to the right every time his arms come in. I can hold him but I cannot try to stop the movement as that can cause more damage to his body.) Needless to say it has been a very hard couple of days - I never would have imagined how hard it is to watch your precious little boy go through seizure after seizure and be told by doctors "There's nothing you can do you just have to wait them out." HA! I would like to know if any of them have ever had to do this!
7. Josiah isn't working two jobs anymore the night one fired him for KISSING ME. Yeah you read that right they actually fired him for kissing his wife when I came to see him one night - is that not stupid? I told Josiah that he wouldn't have been fired for kissing another guy because that is be intolerant but for kissing his own WIFE that is grounds for dismissal. What is our world coming to!?!? Instead he is working 12 hours a day at his other job. This might be better as he can start at 7 and come home then at 7pm.
8. Well I am sure that is not all – but that is all that I am going to write for now.
6 comments:
We are thinking of you all and praying for you. The Lord is faithful and He WILL supply ALL your needs... whatever they maybe... financial, emotional, physical or you name it. May His guiding Hand be upon you, strengthen you uplift your spirits and guide you. We love you all and are looking forward to seeing all the wonderous things that the Lord is going to do for you and through you. Hang in there.
Love,
Ammu for all the Anands
Ps.18:30
Hi there nice to get the update on Dillon.
Tiffany you keep up the good work and always tell him you love him.
I totally know how you feel when your baby has those seizures, and there is nothing you can do. My Curtis use to have 200 a day, small ones not grand mal but he does have those now. It is very scarey even now at his age of 26 for him to go through them. In fact we were to visit him today , he has a smile that lights up the whole world, today he was not feeling well but he still managed to give us that smile.
I think of you often and my heart goes out to you because i have been in the same place and i am still in the same place as you are , we have made it through and you and your husband can too.
Give Dillon a kiss for me
Love Vicki ,
Thanks for sending this.....I need to get off line and start my progress reports that were due last week....I'm so busy and not dealing well with the stress....sorry I can't talk right now....hope all is well with you and your health...I'll try to call soon.....thinking of you always
Love,
Mich
Hi Tiffany,
Have a great evening with your hubby on his birthday. My how time flies. I wish we were close enough to be able to watch our little precious when you go out. Hopefully, you were able to get someone to watch him. Keep looking to our all-knowing and wise God. I'm looking forward to seeing you all and getting to hold Dillon in just a little more than a week.
With love and prayers,
Mom K.
Josiah isn't working two jobs anymore the night one fired him for KISSING ME. Yeah you read that right they actually fired him for kissing his wife when I came to see him one night - is that not stupid?
It has been pointed out to you that this is a lie. Your husband was fired for:
· Stealing time from the company (via excessive breaks to make out with you in the company break room in a manner that was NOT suitable for public behavior, and to meet with you in the parking lot, or to take multiple lengthy phone calls from you)
· Failure to comply with a reasonable request to NOT bring his personal lap top into the office
· Failure to comply with a reasonable request to provide passwords to his company computer accounts to his supervisor
Rather than respond to this allegation, you chose to delete the comment. If you have nothing to hide, you should have been able to respond to the comment—either refuting it, or admitting that your husband had lied to you about the reason behind his firing. That you deleted the comment--a comment that was unlikely to be read by anyone but you since it was posted on a blog entry that is more than 2 years old--tells me you hide a guilty conscious.
Proverbs 12:22 Lying lips are abomination to the LORD
Proverbs 6:16-19 16These six things doth the LORD hate: yea, seven are an abomination unto him: 17A proud look, a lying tongue, and hands that shed innocent blood, 18An heart that deviseth wicked imaginations, feet that be swift in running to mischief, 19A false witness that speaketh lies, and he that soweth discord among brethren.
At one point I posted something on my blog about another person that was untrue. I was repeating something I was told and believed to be true. When challenged on it, I realized the error, and printed a retraction. I did not delete the comment accussing me of lying…though it was tempting to do so.
I encourage you to prayerfully consider this situation. Should you continue to slander Josaiah’s former employer, when you know yourself that you were party to the first point listed above justifying his firing, so you know it is true?
While we are talking about truthfulness, I encourage you to update your readers on the status of your law suit and the multimillion dollar settlement that you made. Have you started to receive payments on that settlement? Or did you learn, much to your shock, that between paying the lawyer and reimbursing the insurance companies for services that have already been rendered, that very little money is left for you? I hope that ruining a very good midwife’s career (yes, she no longer has hospital priviledges), and with that, making midwifery care unavailable to the well over 100 women per year who birthed with her, was worth it.
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