Thursday, April 24, 2008
Sometimes I have bad days, I try to tell Mommy what is wrong but she just can't understand my language. I really have no language to tell her, oh how I wish I could let Mommy know what I need.
Yesterday was a bad day for me. I got constipated again. If only I could tell Mommy that she needs to give me the fish oil again. She doesn't realize that the powder Omega 3's aren't the same for my body as that good fish oil - even though it does stink awful bad! Daddy had bought the powder and asked Mommy to make sure she uses it before it goes bad so Mommy has been adding that to my food instead. My seizures are bad now too, if only I could talk to Mommy and tell her that the seizures started after I had been off the fish oil for several days. My brain needs the fish oil to help it function properly.
My nurse is named Miss Barb, she is really nice to me. She cheers for me and talks to me, she knows that I can understand her and that I know my Mommy. She even says I understand more of what is going on than Mommy! (I understand Mommy just doesn't want to hope too high, but I like Miss Barb)
So anyways, back to yesterday...Mommy and Miss Barb were patterning me when I really needed to have a bowel movement, but I just couldn't I even started bleeding because it was so hard. It really hurt my stomach, I needed to go but it was too painful! Miss Barb tried giving me some things to help me go and Mommy had already given me some mineral oil, but nothing was working.
My speech therapist, Miss Sue, came. She put some really cold things in my mouth and then cheered when I tried to make a face to tell her to stop! Why do they think that is good? I just don't understand why they put cold stuff in my mouth!
Then my Physical therapist came, Miss Susan. She started to work with me (why doesn't she get the point that I always fall asleep when she is here because I don't want to do anything!?) and I went into another violent seizure. I don't like my seizures, I can't understand what is going on around me when I am in it, I can't stop my arms from jerking in the air. I can't stop my head from being thrown backwards. I can't stop my tongue from sticking out and worse of all, I get so tired afterwards. But this time, as soon as the seizure stopped I vomited ALL my food. This was the most I had ever thrown up. The doctors tell Mommy I can't throw up. I wonder if they would like me to throw up on them next time I am there? Hummm....I'll have to remember that! Next time one of them talks like I am dumb and don't understand I am going to throw up on him! So after I vomited and really scared everybody, I finally was able to have a bowel movement, but it hurt so bad I got a hemroid! Then my oxygen levels dropped. I was really tired and in a lot of pain, I just didn't feel like breathing anymore. Mommy, Miss Barb, and Miss Susan thought I got food in my lungs when I threw up but Miss Barb listened to my lungs and didn't think so. I was just too tired to breathe. After a few minutes everyone calmed down when I started breathing deeply again.
The rest of the evening I was pretty tired. I slept really good for Mrs H at church then Mommy and Daddy got a bite to eat at Wendy's with some friends. I had another bad seizure there. I don't like being there with everyone looking at me. It is hard to get my wheel chair out so Daddy just put a towel on the table and I rested there. Jay got to sit in a high chair and eat food, all I can do is lay still on the table and listen to everyone talk and laugh.
I am so thankful God helped Mommy to finally understand that she should put me back on the fish oil because since she gave it to me last night I have not had a single one of my strong seizures!! I know people are praying for me, and I really hope these seizures will stop so I can learn to see and hear and move! Most of all, I want to be able to communicate with my Daddy, Mommy, little Brother (I want to tell him to be nice to me and quit crawling all over me!!) and all those who love me and talk to me like I am a real person!
Well I am signing off now before someone catches me on the computer! Bye!
Saturday, April 19, 2008
After getting it out of the box we started putting it together. Dillon sat by and waited for us to finish!
It actually didn't take too long at all since he labled all the parts and gave us good directions
Daddy having fun after working hard
Dillon on the inclined floor!
Thursday, April 17, 2008
Wednesday, April 16, 2008
Tuesday, April 15, 2008
He was much happier to play when Grandpa Y brought him out a blanket and some toys!
...and the fellowship!
Jay was helping Ms Barb fold laundry
A night of fellowship with George and Kristen Hammett and others (here is Johanna and Caleb with Dillon)
Bro. George with his daughter Anna and son Joel and Brian (Mrs. Y's son in law) with Jay. I meant to get more pics, but forgot at the night went on!
Thursday, April 10, 2008
How to entertain a nine month old? I am not sure, Jay sleeps a lot because he is bored. So the other day we got this tub out. He played with it then he played in it!
This one was taken on my 21st birthday, I found out later that my mom asked the doctors if they thought Dillon was going to live. Since they all said, No he isn't going to live, she begged them to let me hold him while he was still alive. So the only reason they let me was because they thought he was going to die within a few days anyways!
He is chubby, thick legs and chunky cheeks. He is lifting his head and trying to move his feet to push him forward, we know he can see sometimes, we know he can hear my voice sometimes, we think sometime he might be swallowing a little
This is Dillon holding his head up for a long time...
Tuesday, April 08, 2008
This is the first time Dillon has EVER weight shifted. His physical therapist is balancing him, but Dillon is holding his body weight, keeping his head up, staying on his knees, and all the while she was rocking him forward and backwards to shift the weight from arms to legs!!
This one shows how little effort it was on Susan's part and how much it was Dillon doing the work!
Isn't God good?!
Friday, April 04, 2008
Hi Josiah and Tiffany,
I thought you would be interested in reading about a conversation I had today with one of my patients. Jim is an elderly man who has been my patient for about 5 weeks. I see him a couple of days a week and since he has a lot of treatments that I do I see him a good bit. I have struck up several good conversations with him and his wife about God, eternity, etc. I did not think he was saved but never asked him. I had told them about Dillon and gave them his tract about 3 weeks ago or so. This has led to a few discussions. Today Jim found out he needs more surgery so we were talking about life passing quickly, etc and about eternity and his wife spoke up and said, “Jim is saved you know.” I said “Oh, tell me about it, Jim.” He proceeded to tell me that he got saved a few days ago. He told me has been thinking about these things and a pastor came and talked to him about it and he decided to get saved. I then asked his wife if she were saved. She told me had gotten saved a long time ago but had quit going to church but that they were going to start going again. I believe God used Dillon’s tract to help this man think about his soul and eternity. I Cor. 1:26-31.
With love and prayers,
This would be the first person we know of that Dillon's tract had a part in leading them to Christ! How awesome if Dillon's hurt little body is part of the reason this man will spend eternity in Heaven!
Tuesday, April 01, 2008
When I was young, I'd often say, I'd like to be a mom someday
While playing with my baby doll, I thought that jobs not hard at all
I'd have a baby, maybe two, a girl in pink...a boy in blue
Well I grew up and sure enough,
The baby that was sent to me, was born with disabilities
At first I'm frightened through and through, there's much to learn to care for you
This wasn't in my plans at all, when I was young and played with dolls
Your mind and body were so weak, you might not ever walk or speak
So much special care required, I'm often scared and often tired
As months and years go slowly by, I smile a lot but sometimes cry
To watch you grow and not complain, though you endure your share of pain
Oh, how I'd hold you and I'd pray, that you'd be healed and whole someday
But I knew that was not to be, not physically or mentally
And so I taught you best I could, your progress wasn't very good
But then one day I realized, a I gazed into your loving eyes
That I had learned so much from you, determination...courage too
A love so unconditional, it floods my soul and always will
I'm proud to say I gave you birth, for you're an angel here on earth.