Thursday, March 29, 2007
The new title of my blog is going to be "He Maketh No Mistakes" (For those of you who get this by email - you need to come to the site to see the new picture. dillonsmommy.blogspot.com)
Why the Platypus you may ask? Well, I was trying to think of something in creation that is commonly thought of as a "mistake". If you know anything about the platypus scientists say it is a weird creature that is designed very oldly.
This is taken from http://en.wikipedia.org/wiki/Platypus : The Platypus (Ornithorhynchus anatinus) is a semi-aquatic mammal endemic to eastern Australia and Tasmania. Together with the four species of echidna, it is one of the five species of monotremes, the only mammals that lay eggs instead of giving birth to live young. It is the sole living representative of its family (Ornithorhynchidae) and genus (Ornithorhynchus), though a number of related species have been found in the fossil record.
The bizarre appearance of this egg-laying, duck-billed mammal baffled naturalists when it was first discovered, with some considering it an elaborate fraud. It is one of the few venomous mammals; the male Platypus has a spur on the hind foot which delivers a poison capable of causing severe pain to humans.
So I thought of it. God didn't make a mistake when He created the platypus and neither did He make a mistake when He created Dillon. It was not a mistake that Dillon was born to Josiah and I, it was not a mistake that he has brain damge, it was not a mistake that he has so many long term effects from the birth injury. And it isn't a mistake that God is giving us another little boy so soon. Maybe God is going to use JayDonn to help Dillon heal, maybe He is just going to use JayDonn to help heal my heart. I don't know - I just know that HE MAKETH NO MISTAKES!
Wednesday, March 28, 2007
Also on friday night - I accidently pulled Dillon's G-tube out. It clearly hurt him but he only seemed to be in pain for a few seconds. There were a couple drops of blood but Daddy and Grandpa S put it back in for him. Then I took him downstairs and had him laying on me - I felt so bad! Then, even though all day he hadn't moved at all - he picked his head up and scooted up so his head rested on mine. I think he was telling me "I'm okay Momma, don't feel bad!" How sweet it was!
In Church Sunday night Daddy was holding him and he held his own head up for several minutes. And yesterday and today he has been doing just wonderful with moving his whole body more and holding his head up. He even kept it up for the therapist this morning from the position of laying flat on his tummy. This is the hardest position since it has the most gravity to fight - Praise the Lord - he really is making progress with his head! Keep praying!! ( I am starting to call him Mr. Wiggles since he has been moving so much it is almost hard to hold him!)
Our new neighbors are Muslim and they have a 3 year old daughter who is very similar to Dillon. Seizures, poor muscle tone, has a G-tube (she can swallow now though), has a Trac (sp? the thing in the neck to help you breath...only at night does she need it now though), just started to walk at 3 yrs old, never cries, has some vision problems, didn't suck for a long time, didn't hold her head for a long time, needs suctioned, gets all the therapies, etc. I didn't get to meet the girl yet, just the mom and the 5 year old girl. Please pray though - Josiah has had a burden to tell the Muslim people about God but neither of us felt God leading us to go to a mission field - at least not right now. Isn't it neat though that we are following God's leading and He has this all planned out already! So please pray we will be able to talk with these people as we already seem to have a lot in common with them. Another interesting things is the mom (Diva is her name) talked about God - not Allah. I am not sure why.... The neighbors on the other side are very nice people. Josiah talked with him for 2 hours last night. I am excited to see what God has in store for us in Pottstown.
I was very disappointed that no one gave me any suggestions for a new blog title. :-( So - I think I decided on one. You'll have to wait till I can get it changed though to know what it is. And since we are moving that may be a week or so. :-)
Thursday, March 22, 2007
I am the child who cannot talk.You often pity me, I see it in your eyes.You wonder how much I am aware of -- I see that as well.I am aware of much, whether you are happy or sad or fearful,patient or impatient, full of love and desire,or if you are just doing your duty by me.I marvel at your frustration, knowing mine to be far greater,for I cannot express myself or my needs as you do.You cannot conceive my isolation, so complete it is at times.I do not gift you with clever conversation, cute remarks to be laughed over and repeated.I do not give you answers to your everyday questions,responses over my well-being, sharing my needs,or comments about the world about me.I do not give you rewards as defined by the world's standards -- great strides in development that you can credit yourself;I do not give you understanding as you know it.What I give you is so much more valuable -- I give you instead opportunities. Opportunities to discover the depth of your character, not mine;the depth of your love, your commitment, your patience, your abilities;the opportunity to explore your spirit more deeply than you imagined possible.I drive you further than you would ever go on your own, working harder,seeking answers to your many questions with no answers.I am the child who cannot talk.I am the child who cannot walk.The world seems to pass me by.You see the longing in my eyes to get out of this chair, to run and play like other children.There is much you take for granted.I want the toys on the shelf, I need to go to the bathroom, oh I've dropped my fork again.I am dependent on you in these ways.My gift to you is to make you more aware of your great fortune,your healthy back and legs, your ability to do for yourself.Sometimes people appear not to notice me; I always notice them.I feel not so much envy as desire, desire to stand upright,to put one foot in front of the other, to be independent. I give you awareness. I am the child who cannot walk.I am the child who is mentally impaired.I don't learn easily, if you judge me by the world's measuring stick,what I do know is infinite joy in simple things.I am not burdened as you are with the strife's and conflicts of a more complicated life.My gift to you is to grant you the freedom to enjoy things as a child,to teach you how much your arms around me mean, to give you love.I give you the gift of simplicity.I am the child who is mentally impaired.I am the disabled child.I am your teacher. If you allow me,I will teach you what is really important in life.I will give you and teach you unconditional love.I gift you with my innocent trust, my dependency upon you.I teach you about how precious this life is and about not taking things for granted.I teach you about forgetting your own needs and desires and dreams.I teach you giving.Most of all I teach you hope and faith.I am the disabled child.
And just in case you don't know Welcome to Holland, this is that one:
Wednesday, March 14, 2007
First - The author points out that there are three views to disability. Which one do you have? Has that changed at all after knowing someone (actually being close to someone rather than just seeing people at a distance) with a disability? Now be honest with yourself! I defantly held the first view. I felt bad and sorry that it happened I felt as though they have "problems" I still am working at countering this view with the Biblical view.
- The Historical View: Disability is an Abnormal part of Life in a Normal Wworld. This is the view that something is "wrong" with the person or that they have a "problem". It is the view that in history, and even in our liberated world today, causes people with disabilities to be shunned and avoided and mourned over.
- The Post Modern View: Disability is a Normal part of life in a Normal world. This is the view held by those who are afraid of offending. They want to encourage "celebrating" disability. When I read this the first thoughts that came into my mind is that they are ignorant and that they are offensive. I have YET to have anyone come to me and say they are jealous that Dillon was born to me instead of them because they so desired a child with disabilities. No one ever goes out seeking a disability for themselves. It is ludicrous and absurd that anyone would want to celebrate disability.
- The Biblical View: Disability is a Normal part of life in an Abnormal world. Did you get that? Only the Biblical view sees our world as the "abnormal". Our world is stricken by the fall - there are consequences of the sin. Everyone suffers from physical and spiritual difficulties because of the fall. A person with a disability is just has the physical/mental consequences more evident in their life. They often have a much better spiritual understand because of this, though. They are not to be shunned but don't try to celebrate it either. When I read this I thought of celebrating cancer or soldiers dying in a war. Those are not to be celebrated - they are to be understood as normal life in our abnormal world.
These thoughts really hit home to me. Do I look at Dillon as though he should be shunned? Not really - but I think I honestly feel as though he WILL be in his life. Most people in our world don't have the Biblical view on this (especially not when most Christian don't - myself included). They don't see every individual as an expression of God's glory. I know I don't always look at a person and say "Wow, God created that person - how wonderful!"
The next thought that really hit me was about relentlessness. Now every family will experience this, but for the families of a disabled person it come so much more often. Simple every day tasks are so relentless that I won't even get into that right now since this post will be long enough but I think you can imagine. But what about our response to the relentlessness? She used Joseph's life as an example in this. There are three reactions possible:
- The Victim Mentality - the world owes me, I can't believe this is happening to me, etc. If Joseph would have had this he would have cursed God, gotten depressed, and died with a meaningless life.
- The "I will beat this" Attitude - This is where you view disability as cancer - something that can be beat. You believe you will overcome it not matter what it takes to do that. If Joseph would have had this he would have given in to temptation and then broke out of jail with the help of the baker and cup bearer gone and killed Pharaoh and then killed his brothers.
- Engage Reality with a God-Reliant Perspective - This sis where you accept whatever life gives you because you are God-focused not difficulty-focused. This is the only view that keeps God as the center of your life. The other two allow you to make your whole life about the problems. It is putting your circumstance on the throne in your heart instead of God. He allowed these things to happen, surely we can look to Him while going thru it all.
Okay that's enough for now - but there will be more coming so look for the posts titled "Same lake Different Boat" (By the way that means that people without disabilities are not in a different lake as though with it - nor are they in the same boat...they are in the same lake but a different boat. As a church we are even closer - we are the same body different parts....see the parallel?)
Friday, March 09, 2007
Okay - so please submit any and all ideas under Anonymous - that way if I pick one I won't feel bad for not picking someone else's. :-)
Wednesday, March 07, 2007
Tuesday, March 06, 2007
In the meantime- I am still trying different homeopathic things to help with his tummy aches. I am seeing some progress, but not as much as I would like. It is a trial and error kind of thing since he can't explain his symptoms to me. Please pray for wisdom that we might be able to find one to help him feel better.