I have survived the first two days and am now on the third! It is a lot of work, but the rewards will make it all worth while! Here is a blessing, the Lord is already using our work to help Dillon in small ways: Today I saw Dillon's eyes go from the top on his head down when I had the lights off and a small flash light shining on my hand. Do I think he saw it? I think he saw something anyways! Will it happen every time now? NO - BUT each time it happens it is strengthening his visual pathway. I also put him on the inclined floor (I call it a ramp for future reference) this morning. I have been putting him on it 8 times a day. This morning he actually moved his left arm to get down it!!! His hand was upside down (on the back of the hand rather than the palm, but who cares - he moved!) Will he do this every time now? NO but every time he does he is learning that he can move himself.
I want to share the blessings we see as we see them. I also want everyone to understand that some days will not be good, other days may be great. This is just how it is going to be. It is going to be a long, slow, hard road. But if at the end, Dillon can see and/or communicate and/or move and/or stop having seizure etc Don't you agree it will be worth it? :-)
Thank you for praying! I know people are praying for us everyday and that is amazing. I am the one here working with Dillon all day - but every one who prays for Dillon to make progress has a part in this. The Institutes said other siblings don't mind helping because they understand they are helping to save their brother's life. They understand it is such an important task and they usually are quite proud of the fact that they get to help. God is in control of all of this, but your prayers play such a big part in it!!
Please pray for:
1. Dillon to make as much progress as he can
2. Strength for Josiah and I to be consistent with the schooling (7 days a week, including the Christmas holiday time)
3. Nurses for at night so I can get the sleep I need to do the school
4. THAT GOD WOULD BE GLORIFIED IN DILLON'S LIFE (AND OURS!)
2 comments:
this is such an adventure! you're going to be able to look back and know that you brought your son from being able to do hardly anything to being able to many things he never would have. what a miracle. i'll pray for your patience, and stamina in keeping up with this slow process. and definitely for the nurse, man do i understand the need for a good night sleep.
It was cool to see you on my blog.
i probably ran across your blog when i was following links on my friend, Kristi's blog, Thimble Thoughts. It's kind of like a web, lol, I follow her links, and they lead me to good blogs that lead me to other good blogs.
I was touched to read your blog, and was glad that you gave the option of letting let me follow up.
my son, gabey, has leukemia, and we've been dealing with his treatments since May. It was quite a shock, and has been a real challenge for us and him. But, somehow, the Lord has brought miracles into his life, and is healing his body. I just gave birth to my 2nd son, Gideon, and he's two months old today. I just feel like I have a bit of a connection to you, and your struggles. I know a little of your pain, though in different ways. Am I making sense? It's good to meet you, and I would like to keep following little Dillon's progress. Thank you for making the blog. It helps us all know what to pray for. :):)
shari
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