Day 7 at CHOP was probably the hardest day yet. Not because Dillon is declining, not because he had a bunch of test or even surgery. Today was hard because of a Dr. Paul Offit. Here's how it happened:
When the doctors did the scope on Dillon they took samples directly from his lungs to culture and see what bacteria was in there. The results were positive for several things; including staph, e coli, something that is often immunized against, and something the attending didn't even know what it was. No one knows how he got these bcteria in his lungs. The doctors contacted ID doctors (Infectious disease) to make sure the two antibiotics Dillon is on are enough to kill all these bacteria.
The ID fellow came in and talked with me about how they wanted to stop all antibiotics since he is so good clinically and does not seem to be reacting at all. She said they think his plastic bronchitis was because he is not immunized. She wondered why we do not immunize him and if I immunize my other children. I told her how I knew of someone who had a son with brain damage and it was made worse - both clinically and on a brain MRI - after an immunization. I also told her how Truett went from smiling and sitting up on his own to staring right through us, not smiling, took over a month to start to sit again, and how his hand shook and he couldn't find his mouth to feed himself snacks anymore after an immunization.
She told me to ask her attending if I have any questions since he knows all about vaccines and dedicated his life towards them. I didn't say much since I didn't feel I have any questions. I am comfortable with our decisions.
After she left I knew they were going to keep pushing the vaccine thing so I started to do some research again to pass the time. My mother in law sent me an article that someone "just so happened" to send to her this morning on Hep B vaccines. I posted a quote on my facebook and some friends and I started talking. A friend "just so happened" to send me a link that had resources about what is in vaccines and the effects of them. I "just so happened" to find a link on there for a video that I watched.
The video was from CBS news questioning how independent are these groups that claim to unbiasedly test vaccines to know if they are safe. CBS found that the American Academy of Paediatrics takes hundreds of thousands, even millions, of dollars from the drug companies that make the vaccines. One company even funded their headquarters!
There was one doctor named that was well known to advocate for the vaccines. He is from... you guessed it... Children's Hospital of Philadelphia. He sits on a board here that is funded by a drug company in the amount of 1.5 million dollars! He owns a patient for a vaccine that the royalties sold for 185 million. CHOP made about 150 million off of it and the doctor made somewhere around 6+ million (according to other articles I was reading). This doctor was also quoted to have claimed that it is safe for a baby to be given 10,000 vaccines at once!
Please watch the video - to see for yourself and to make sure the terms I used were all correct. The video can be seen here: http://www.cbsnews.com/stories/2008/07/25/cbsnews_investigates/main4296175.shtml
After watching this video I couldn't believe what I heard. I thought to myself - humm I wonder if I could find this guy here and ask if he would be willing to get 10,000 vaccines at once so I could see that it really is safe.
About 20 minutes later, guess who walked into Dillon's room. THAT same doctor, Dr. Paul Offit! As soon as he said his name I knew who he was. He said again how they don't want to treat him with antibiotics and then started right into vaccination speech.
He told me that I am "putting him in danger by not immunizing him." I knew I would not be able to talk with him so I said You can leave. I also told him that I don't need a doctor to come tell me I am putting my son in danger when everyone is surprised at how healthy he is, how he coughed up the mucus plugs that healthy children can't cough up, how his lungs looked better than they thought. I told him I just saw a video about him. Again I told them they needed to leave the room. I followed them out of the room and Dillon's nurse and I both heard him say in the hallway "Well, that was fun."
I then told his nurse what just happened as I was shaking. A social worker was just bringing me some meal vouchers and I told her that something just happened so she told me that she would probably get a page to come talk with me so we chatted for a few minutes. I also asked the attending from the floor to come in so I could explain why I told this doctor to get out.
One thing I can't quite figure out: If I "put him in so much danger" by not immunizing him and that is what supposedly caused this bronchitis... why did he want to stop treatments? Why did my attending seemed shocked when I told her he wanted to stop the antibiotics and had to go get him to sign off that she CAN continue to treat him?
I was shaking for a while and felt terrible! I never told a doctor to get out of my room before. But I will not have a man, who is basically a politician being paid to push an agenda, tell me that I am putting my son in danger! He knows nothing about me, Dillon or what we do for Dillon. I do not believe I am putting him in danger by not injecting him with 55 vaccines that contain mercury, formaldehyde, anti-freeze, animal feces, animal blood products, etc. in them.
Dillon is extremely healthy for how severely disabled he is and I will not have a doctor tell me I am putting him in danger! How dare this doctor try to bully me into doing what he wanted! Attack me as a parent when all I want is to treat my son as naturally as possible to preserve his liver and kidneys so he can have a long healthy life.
There is a lot of info on Dr. Paul Offit if you google him. Some good, some not so much. I understand he is working to try to make kids healthier. I don't doubt his intentions are probably good. I do question at what point does money skew your view? How much money does it take? Dr. Paul Offit claims money, even his 6+ million hasn't skewed his position. Maybe he just has poor bedside manner to talk to parents like this. I'm not sure, what I am sure of is Dr. Paul Offit won't be seeing my son again.