Thank you to everyone who left comments, your notes of encouragement mean a lot to me. I am feeling much better today. I guess maybe it is going to be like this for a while, but last night my husband spent time in God's Word with me and prayed for me. I really think all these things did help my mood to be much brighter today. Thank you for praying - I guess in many ways I need your prayers as much as Dillon does.
I didn't want to get my hopes up - or anyone else's for that matter - but last night Josiah was holding Dillon in a "football" hold (his head in Si's hand and his legs near Si's elbow). Josiah stood on our bed because we have very dark pipes as our ceiling so I decorated with white lights and by standing on the bed Dillon was right near them. Si would move his arm all the way to the right and Dillon would turn his head to the left, Si would go all the way to the left and Dillon's head move to the right. Si is pretty sure he was tracking the lights! I saw Dillon doing it and would tend to agree with Si, I am just being a pessimist because it is easier than getting my hopes up only to have them be crashed - again.
The Speech therapist saw him today for the first time and told me how to work with him a little better. She has never worked with a child who couldn't swallow at all though and has only worked with 2 or 3 babies this young. She seems like she is going to be okay anyways, she said she is going to do research to make sure he is old enough for her to try something called cold therapy. I guess that is where we would dip a Q-Tip in sterile water and freeze it. Then we would somehow put it on the back of his throat. She said she thought she saw little movements in his neck - which would mean swallowing - but couldn't be sure at this point. We mainly have to work with him to strengthen his mouth muscles.
Most of today was spent making phone call after phone for doctors, and bills, and Social Security stuff, etc. But it was a good day. Oh yeah, the neurologist said to have another MRI done in the next week or two. If it were just an injury his brain should be "normalized" by now, if it isn't - well we will cross that bridge when it comes (those were his words, not mine.) I was under the impression that it is permanent damage - but I guess it may not be. The last MRI was done when he was 11 days old, now that he is 10 weeks and by then 12 weeks they should be able to tell if his brain is "fixing" itself or not. This is a blessing! I am praying that the MRI will show improvements - if not a PERFECT brain scan...Hey - God can do it, right?